I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Tuesday, August 5, 2008
Wrong way - Back up
Ada is spilling more protein today. She is only at a 2, but we need to change direction and get back to trace and negative. There isn't much we can do to make that happen, it's all up to the kidneys. But we are watching low sodium so that if she does a complete relapse hopefully the swelling can be kept from getting too bad. We'll keep you posted.
1 comment:
My prayers are with you all!
Post a Comment