An NS friend asked me how long it takes for Ada to respond to increased prednisone. (Most patients respond within 1 to 2 weeks, but it can take as long as a month.)
After the initial presentation it took 7 days before a drop was noted, and another day before she held at trace to negative.
After the first relapse she responded to the increased prednisone within 5 days, and was trace to neg within 7 days.
After the 2nd relapse (the last one she had) she responded within 7 days, and was consistent trace to negative after 15 days.
So that is good for us to look at. This disease does not have a lot of research, and all treatments have their pro's and con's; so we will have to take everything into consideration. I hope we will have the wisdom to make the best choice for Ada.
3 comments:
Hi my name is wendi, my son was diagnosed with mcns in nov of 2006 and we have been up and down on the pred. as well. He bacame steroid resistant and had to be put on cyclosporine. this helped he was protien free for the whole course of the cytoxin treatment and three months after then he got a sinus infection and started all over. Sometimes I wake up and dread taking his protien. But like your daughter he's a trooper and his big heart and positive attitude keep me going. I'd love to talk. you can email me @ ashtonafb@cox.net.
You and your family are in our prayers.
Wendi :)
We love you all and your positive attitude. You are in our prayers. Mom and Dad Lynn
How's she doing today? Gray's protien is up still. We started him back on the pred. yesterday, fingers crossed it works again.
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