Ada's Nephrotic Syndrome

I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.

Thursday, March 10, 2011

well - it's been a while. Ada went a year and a half without any problems, then last summer she had a relapse. She did a run of prednisone and was OK for another 4 months. At the first of the year she did another course of prednisone, but shortly after she went off she has relapsed again.

She is going back on prednisone, a higher dose this time, with a quicker taper. We'll cross our fingers that it will hold for a while so we don't have to talk about more of the intense auto-immune drugs.

One other thing - she has not had any illness to trigger this, but she is congested from allergies. We are going to aggressively treat her allergies and see if that will help keep her from relapsing again.