Ada's Nephrotic Syndrome

I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.

Friday, December 9, 2011

2011 update

Thanksgiving Day we completed the weaning process off of prednisone. 2 weeks now and we are protein free. I think the Dr made a good call to treat her as if we were starting from the beginning. Do I expect her to relapse? Honestly, yes, I think it will happen again, but I'm hoping we'll see a good year before it does happen.

Again, the expectation is that while she will relapse they will become less and less frequent until they don't happen anymore. So while a relapse is a set-back, it doesn't mean we aren't making progress.