Tuesday, June 12, 2018

Time passes

Wow, has it really been 2 years since I last posted?  No news has been good news.  She is still on the tacrolimus, 1.5mg 2x daily.  She has only relapsed once since I last posted, and it was because she was sick and missed too many doses of her meds.  I think it is good news that there have been a couple times her protein have risen, but they have gone down on their own within a weeks time.  She has not been back on prednisone for well over a year.

This summer she is working as a lifeguard at a scout camp.  She has done better at remembering to take her medicine, I hope she will keep it up.  It's a leap of faith to let her go for 2 months and be on her own, but she needs to learn to manage it on her own sometime, and she needs to have as normal a life as possible.  The camp is willing to communicate with me and make sure she is able to contact me if needed.  Next appointment in another 6 months for a follow up.