Ada's Nephrotic Syndrome

I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.

Sunday, May 13, 2012

Happy Mother's Day

I thought I better give a quick update.

I last posted that Ada had come down with a minor cold/flu and with that we found her proteins up in the 2+ range. I had her take care of herself so she could get better and we watched and prayed.

Blessing of blessings, as the illness faded away so did the protein level. Her body recovered on its own. (It is not uncommon for anybody to spill proteins when their body is stressed, so this was not a relapse!) What a wonderful Mother's day present, for Ada to be protein free for a week again.

Wednesday, May 2, 2012

Proteins

Ada woke up feeling sick the other day: mild fever, upset stomach, generally unwell. She slept most of the day. Today she still felt a little off but got up anyway and started feeling better through the day. I told her to go take a pee test so we could keep an eye on things. In the past she has never had a relapse associated with an illness. I guess this time is different. Although she wasn't spilling any proteins on Monday, she is today at a 2+. Hopefully as the illness resolves itself her body will resolve the proteins too. It isn't uncommon for anybody to spill some proteins when their body is sick or stressed. We'll post updates as they come.

On the positive side, This is the first sign of any proteins since last November.