Ada is having fun with her cousins. Sis e-mailed today and said that Ada wanted to call her dip test a 2, but Sis said it was not a 2, probably a 3 as it didn't look like a 4 to her. So maybe we are starting on our way down. We have had some "It's not a 2, but doesn't quite look like a 4" days, but then the next day it is a definite 4. So hears hoping that we can start having more of those, and even some 2 days, working back down to trace or neg. Usually when Ada drops she drops pretty quick. So we will take any chance for hope that we can.
The Nurse Practitioner who is managing Ada's case called me back Friday. She wanted to make sure Ada is swollen, not just getting fat from over eating. (Ada is swollen, she may be gaining some fat from the Prednisone, but she is also quite swollen, as evidenced by the pitting edema). She asked how much Ada was drinking and was surprised to hear she isn't drinking more. (Ada also has had a limited apetite, always hungry but never eating much). She reminded me about salts and "hidden salts" - salt used in prepared foods - and suggested we keep Ada's fluids restricted, but keep it consistent through the day. Make sure she is sipping, instead of chugging, water.
She is going to run an extra blood test on Monday, when we go in for a white cell count, to check her protein blood level. Maybe that will give us more answers. And hopefully by then her protein level in her urine will start to drop.
1 comment:
We continually keep Ada in our prayers and thoughts. Thanks for keeping us posted so often. I hope you and Morgan are getting some rest and will be ready for next week. We love you. Mom and Dad
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