I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Thursday, March 13, 2008
New Daily Routine
While for the most part we try to keep Ada doing all her regular activities, a few new things have been fit into her daily schedule.
Each morning she has to do a urine catch and dip. The sticks weren't easy to find, but a good pharmacist checked all over the area for us and was able to help us get them. They show us how much protein her kidneys are leaking. It should read negative, but right now she is reading high, although in this picture it is the first time the color isn't quite so intense.
At noon time she gets to take her prednisone. Since she was able to swallow pills they sent her home with pills instead of liquid. So at lunch she is suppose to take 4 1/2 pills with food. She likes to take them with the rolls I made her.
1 comment:
The information you've included here, and the pictures showing some of Ada's daily activities are very helpful. I love the food chart! Tell Ada I think it's great that we can prednisone buddies. She looks like she is better at it then I am.
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