I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing.
This blog chronicals the events, emotions, and more she and we as a family went through.
The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Monday, March 31, 2008
Back Down
Ada's proteins held at 1 over the weekend, but today, monday, they are back down at a trace. So we just keep monitoring, watching the sodium, and praying that she will continue to improve.
My 5 year old daughter was diagnosed with NS very recently. I have read your story with much interest and understanding as my life is now very similar.
I pray that Ada will remain in remission permanently.
I am so glad to see that others are finding their way to this site, especially those affected by NS, and hope they will find comfort in knowing they are not alone; I pray that their child will have as good a response to therapy as we have been blessed with.
Our prayers are will you, your daughter, and your family Jill.
2 comments:
Hello,
My 5 year old daughter was diagnosed with NS very recently. I have read your story with much interest and understanding as my life is now very similar.
I pray that Ada will remain in remission permanently.
Jill
I am so glad to see that others are finding their way to this site, especially those affected by NS, and hope they will find comfort in knowing they are not alone; I pray that their child will have as good a response to therapy as we have been blessed with.
Our prayers are will you, your daughter, and your family Jill.
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