I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing.
This blog chronicals the events, emotions, and more she and we as a family went through.
The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
No comments:
Post a Comment