Wednesday, September 10, 2008

6 months



We have now been "friends" with NS for 6 months. It has been an interesting journey, not entirely a bad one.

We have learned a lot, about NS, kidneys, and ourselves as individuals.

Ada has been unable to get steroid free, so she is currently doing a Cytoxan course (8 week). Once her proteins dropped she has not even had a trace of protein. We are half way through the course this week. She has not had any side-effect problems from the cytoxan that we are aware of.

We are excited at the prospect of gettting her off the prednisone. She has gained a little weight from the prednisone, and her face has the puffy tell tell signs, but otherwise she is healthy and happy. She will have a check in with the Nephrologist next week to confirm that all is going well.

It was interesting to learn that our new family practitioner did an extensive study of the side effects of cytoxan as part of his medical school. He asks about her any time someone from the family comes in.

1 comment:

ashton4inlv said...

She's such a beautiful little girl. I'm gald to hear all is going well.

Wendi & Grayden.