Wednesday, January 2, 2013

State of the Ada address

We are coming up on the end of 5 years with NS.  Ada is doing pretty well.  She had a relapse earlier this year, but has been prednisone and protein free since early November.  She is growing into a delightful young woman.

We have not noticed any significant side effects from the treatments she has been under.  She is shorter than many of her friends, and even her younger sister, but we do not know if that is a result of the prednisone or the genes she happened to inherit. She has cousins who are shorter than their younger siblings, and while she is short, she is not disproportionate.

Ada does not allow NS to slow her down.  She is active with her friends, learning to swim, and becoming a fabulous little pianist.  We are hoping this will be the year she so goes protein and prednisone free.  We hope you will be protein and prednisone free as well.  But if not, keep your chin up and hang in there, hopefully that day is coming.

1 comment:

Unknown said...

i hope your daughter would be protien and prednisone free soon, my son also has NS he was diagnosed just last year september. I would like to gather some reminders from you if you dont mind