Ada's visit went well. As long as she is responding to the prednisone without suffering from side effects they will continue with the current course of medication, even if she is dependent on it. If she stops tolerating the prednisone or quits growing then they will look at switching course of medicine, most likely to Cyclosporine (or Cytoxin?) for a short course to see if that will work. But at this point, so far so good.
They did ask if she was always so smiley and giggly and hyper, or if the prednisone was having a big impact on her personality. I had to confess that she has always been a whirlwind, but her moods are just a little more intense on the prednisone. Also her eating needs to be watched from time to time, but due to her energy level we don't need to restrict calorie intake much.
They did ask if she was always so smiley and giggly and hyper, or if the prednisone was having a big impact on her personality. I had to confess that she has always been a whirlwind, but her moods are just a little more intense on the prednisone. Also her eating needs to be watched from time to time, but due to her energy level we don't need to restrict calorie intake much.
Included here is a picture of her just being a normal child on a family outing. Although we are dealing with protein tests, medications, and dietary precautions; there is still plenty of room to just be a normal child.
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