I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Sunday, June 8, 2008
Tapering Again
Ada's proteins held at trace to negative for a week, so we have begun the taper again. She is now taking 30 mg prednisone every other day. We identify days as "Prednisone days" and "Non-Prednisone days". I don't do this because they are "good days" and "bad days" but because I can check the log and tell Ada what kind of day it is, then she can remind me at lunch time if she has to take prednisone with her lunch. (I am such a space case these days that it is good she can be responsible too)
1 comment:
Tried to get onto your other blog- but it didn't work. FYI: I tagged you... come & see!
thewildbanks.blogspot.com
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