Ada's Nephrotic Syndrome

I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.

Sunday, June 1, 2008

Positive response to medication

Ada's proteins are holding at trace or negative. That is good. She is doing well and very happy, with plenty of energy to burn. She has been complaining of stomach aches in the evening and I have wondered if this could be a sensitivity to the prednisone. I will have to ask the Dr when we see him again. She did not swell at all that I noticed this time, thank goodness for our little protein test strips. I am glad that the relapse cannot sneak up on us over and over again. Always greatful for little miracles.

2 comments:

Cathi said...: Yeah! So glad to hear the good news. Is Ada taking her prednisone with food? She probably is, but if not, she should be. Prednisone is pretty hard on the stomach.

Keep up the good work, Ada. You are such a trooper...taking your medications and using your dip sticks.; June 2, 2008 at 11:23 AM
McKinnon said...: I try to make sure she has her prednisone with lunch.

I think she does best when she takes a pill, has a couple bites, takes another pill, has some more bites, another pill... (5 pills in all). But sometimes it is hard to get her to slow down that much and she just gulps it all down at once. That is when she seems to have the most trouble.; June 2, 2008 at 2:16 PM