Yesterday we were able to reduce Ada's prednisone from 30mg every other day to 25 mg every other day. She will only take 4 doses of this and then we will reduce again to the next level, assuming we have no setbacks.
A few days ago her protein levels slipped up to a 1+ for the day, but then immediately fell back down to negative and have held there for the las 3 days, so I am learning not to get excited when her proteins raise up to a one. Our instructions say we don't need to contact the Dr unless she holds between a 1&2 for a week, or raise to a 3-4 for more than 2 days.
My understanding is anything can cause a temporary raise in proteins, from a slight cold or allergies, to testing the urine after she has already been up and about for a little bit.
So everything is looking good at this point. We'll keep you posted as we continue the step-down process.
3 comments:
Yeah for ADA! I'm so glad to hear that she continues to progress. Please do keep us posted.
Hugs!
Just as we were tapering molly down she relapsed again!!!!! Now they want to put her back at full dosage plus talk of a biop. I am heartbroken with this all.
I'm so sorry to hear this. Our heart breaks for you. I pray for strength for you and your darling Molly. Keep us posted.
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