Drat! We didn't go the right direction this morning. Ada's proteins were up to a 3+. She hasn't been this high since the first week we started medication clear back in March.
Today was suppose to be another step down in her prednisone dosage, but I wasn't comfortable with that since she is headed in the wrong direction. So I called the pediatric nephrologist on call (of course it is the weekend when things go south) to get some guidance until Monday. She was very kind and suggested that keeping Ada's prednisone dosage stable would be best over the weekend; and to test the proteins daily, then call if they remain up in the 3/4+ for more than a couple of days, which will put us on Monday, regular business hours, and they would determine whether to increase her dosage. If her protein drops and holds then we can continue the step down.
Of course we are to keep her sodium low and watch for sudden increase in edema, or for a fever. In the event of fever or pain we are to get her to the hospital immediately as this is a symptom of peritonitis, a serious infection. I don't expect we will experience this since we have caught things early.
So that is where we are at this weekend. Watch and Wait. We will of course seek a priesthood administration for her this weekend. Keep her in your prayers. Thank you for your support. Again, we'll keep you posted.
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