I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Monday, December 15, 2008
2 months free and still counting
Today marks 2 months being prednisone and protien free. The cytoxan is doing its job.
That first picture is from her last relapse in Aug. The other is her current school pic from Nov. She is certainly doing well. Thank you for all the extra prayers in her behalf. Hopefully she won't relapse, but we'll keep you posted either way.
5 comments:
Please tell Ada we are so proud of her for being so brave through all of this. I;m glad to hear she's still on the right track. We will keep your family in our prayers.
Wendi :)
Hi,
This is Christy. My daughter has NS also and I found your blog through Tina. I just wanted to tell you congratulations on being prednisone free and protein free for so long. I am truly happy for you. I'm sure it is a big relief for you as her Mom. Feel free to visit my blog... www.thecrossleycrew.blogspot.com
It would be great to keep in contact if you are interested.
Christy:)
She looks great! Such good news! I am so happy for you all. I hope she continues to do well.
YEAH ADA!! Keep it up! You look great and we're so glad to hear that you feel great too!!
Have a MERRY CHRISTMAS!!
Diane (a cousin of your mom's)
Hi,
I emailed with you several months ago. My daughter (Tori 6) was diagnosed w/NS about the same time as Ada. I was just checking in to see if she is still in remission and doing well. Since you haven't posted, I'm assuming so.
So wonderful that she is doing well!
Jill
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