I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing.
This blog chronicals the events, emotions, and more she and we as a family went through.
The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Monday, November 17, 2008
Mark One Month
Today makes a full month that Ada has been protein free without the aid of prednisone or other medications.
Sending our heart felt prayers to those who are in the middle of a relapse.
Praise God! I am so glad to hear Ada is doing so well. Thanks for directing me to your blog. I've found a lot of useful information here. Lily and I will be praying for Ada's continued recovery! Julianne:o)
Oh my, I am so happy! That is great! I can't wait for that day to come. I found another mommy with a daughter with NS. Here is her blog. Her daughter is pretty sick right now and I am sure she could use our support.
3 comments:
Praise God! I am so glad to hear Ada is doing so well. Thanks for directing me to your blog. I've found a lot of useful information here. Lily and I will be praying for Ada's continued recovery!
Julianne:o)
So glad all is well! Our prayers will continue.
Oh my, I am so happy! That is great! I can't wait for that day to come. I found another mommy with a daughter with NS. Here is her blog. Her daughter is pretty sick right now and I am sure she could use our support.
http://www.thecrossleycrew.blogspot.com/
Tina
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