I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing.
This blog chronicals the events, emotions, and more she and we as a family went through.
The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Tuesday, October 28, 2008
1 week free
As of Monday we have been 1 week without any meds and Ada continues to be protein free.
Grandma and Grandpa Lynn are SOOOOO happy that things are going this well. We're keeping her (and you all) in our daily prayers. It is so good to be able to get on the blog and read this. Yeahhhh, Ada!
2 comments:
That is great news!!
Tori (6, MCNS) has been med free for 6 days, but has some kind of virus, so hoping she can keep her levels down.
Jill
Grandma and Grandpa Lynn are SOOOOO happy that things are going this well. We're keeping her (and you all) in our daily prayers. It is so good to be able to get on the blog and read this. Yeahhhh,
Ada!
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