I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Friday, July 18, 2008
Holding off on taper process
Even though it has been a week since Ada responded to the increased medication she continues to have protein leaks up to a one, so we will maintain full dose until she can maintain one week of trace to negative protein leaks. I expect that should be within another week, or at least I hope so. In the mean time she is looking and feeling good and enjoying summer playing with friends.
1 comment:
Thanks for the update. Hang in there!
Cathi :-)
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