Although Ada is still spilling lots of protein, at least the swelling is not increasing. She alternates between play and rest, depending on how she is feeling, usually related to how her stomach feels. At night she likes to sleep ont he couch upstairs near us because she gets naseated. When she gets up in the morning she seems to feel a little better.
So at this point we are holding steady, not getting better yet, but not getting worse either, and for that we are thankful.
On a side note:
The other day Ada was visiting a neighbor's garage sale. A shopper asked our neighbor if Ada had Nephrotic Syndrome. This woman explained that she had NS for 14 years as a child. She is now 30+, married, with 3 cute children. She said that for her the relapses tapered off about the time she hit puberty, and eventually went away all together. It was nice to see a success story and gives us good hope for Ada.
1 comment:
Well, I guess there are blessings in not getting worse, even if it isn't getting better. Does the stomach pain seem to be related to the prednisone or something else.
I'm sure it is frustrating to see her down, physically. I find it interesting that her namesake, Aunt Ada, had a similar health situation (not NS) but a health condition that keep her indoors and resting) for much of her young childhood. Because of this, her father, Archibald, spent many hours sitting by her bedside, telling her stories of Scotland. This was a blessing in her life, and ours, as she is the only child that knew many of the stories, and passed them along in her writings.
What an uplift to have the example and hope of the woman at the garage sale! It's nice to have something to look forward to.
As always, Heavenly Father can make all things work together for our good if we allow him to do so. And he often sends others to lighten our load and give us the courage to press forward.
Our prayers continue to be with Ada and your family.
Cathi :-)
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