I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Monday, November 23, 2009
Steady as she goes
Pee tests are getting old. She is stuck at trace, with an occational day or two bump up to a 1+, but never a negative. So what does that mean? I don't know. I guess I ought to call the nephrotic center and see if that is acceptable, or if we should be trying to get her down to neg. Otherwise, she is a happy healthy girl, looking forward to her first dance review and a normal Thanksgiving dinner.
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