I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Monday, November 23, 2009
Steady as she goes
Pee tests are getting old. She is stuck at trace, with an occational day or two bump up to a 1+, but never a negative. So what does that mean? I don't know. I guess I ought to call the nephrotic center and see if that is acceptable, or if we should be trying to get her down to neg. Otherwise, she is a happy healthy girl, looking forward to her first dance review and a normal Thanksgiving dinner.
Saturday, November 7, 2009
Friday, November 6, 2009
Wobbly, with hope
So we are testing daily. Some days the stick is a little lighter, almost yellow (trace) and we cheer and hope. But the next day the stick is that ominous green (1+) and we sigh, "Oh, well. At least it isn't blue (4+)."
Anyway, Life is good. She isn't swelling, hasn't been sick, and continues to bounce around with enthusiasm for life.
Anyway, Life is good. She isn't swelling, hasn't been sick, and continues to bounce around with enthusiasm for life.
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