I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Wednesday, October 21, 2009
Forgot to Knock on Wood
Right after I posted the last update, celebrating a year without meds or protein, A random urine test indicated a slight rise in proteins.
Over the last year checks varied between neg and trace, normal for most people. So instead of daily checks we were able to just do occasional tests, usually every other week or so.
This last week the test came back slightly elevated. Not enough to push a panic button, but enough that we are watching daily for a spike, or hopefully, for a return to normal. (the scale is exponential, so even though we are elevated, we are a long way from where she has been)
We enjoyed our hiatus and hoped that there would not be a relapse. Perhaps it won't be anything to worry about. Ada has not been sick, or suffering from allergies, so this is a little perplexing that the proteins have returned.
Current plan of attack, continue to monitor daily for another week or so watching for elevation in proteins and/or swelling (currently there is no edema). If a spike occurs, or if the elevated levels do not return to normal we will contact the Nephrotic Center for further instructions.
Happy testing :-)
1 comment:
please tell me she's neg. now. We are praying for your family. so far "knock on wood" Gray is still neg. Please update us on how she's doing.
Wendi :)
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