Mark One Month

Today makes a full month that Ada has been protein free without the aid of prednisone or other medications.

Sending our heart felt prayers to those who are in the middle of a relapse.

Kidneys Holding

In spite of the 'flu' yesterday Ada's kidneys are holding in there and protein is at trace. That's a good sign. Thanks for prayers.

In all honesty, we expect there will be an occational relaps, but statistically she should respond better to the prednisone now that she has had a cytoxan course. But it would be great if she never had to deal with this again.

For now our instructions are to test for protein once a week, daily if she is spilling proteins, swelling, or sick. But even then we don't need to worry unless she goes beyond a week with higher protein levels.

1st Test

Ada has been doing great, no protein spills. Today at breakfast she vomited, likely a stomach bug that is going around and has kept her from play dates with friends (hopefully of the 24 hr variety). So now we'll see just how effective the cytoxan is. Wish her luck.

Kids are Kids

The great thing about NS, is although it can be a frustrating disease, as long as it is being treated it doesn't keep kids from being kids.