Wow, has it really been 2 years since I last posted? No news has been good news. She is still on the tacrolimus, 1.5mg 2x daily. She has only relapsed once since I last posted, and it was because she was sick and missed too many doses of her meds. I think it is good news that there have been a couple times her protein have risen, but they have gone down on their own within a weeks time. She has not been back on prednisone for well over a year.
This summer she is working as a lifeguard at a scout camp. She has done better at remembering to take her medicine, I hope she will keep it up. It's a leap of faith to let her go for 2 months and be on her own, but she needs to learn to manage it on her own sometime, and she needs to have as normal a life as possible. The camp is willing to communicate with me and make sure she is able to contact me if needed. Next appointment in another 6 months for a follow up.