We saw the Nephrologist and his team last week. Ada bounced in and was in a room before I finished filling out the paperwork again. Her Nurse Practitioner came in and interviewed her, Ada gave her a picture she had drawn, and chatted.
The nephrologist came in and was happy to hear that she has been off all meds for 6 mo. without a relapse. He said hopefully this is over but, not to be disappointed if we do have a relapse. The good news is that if we relapse she should respond better to the steroid treatment than she did before.
So Sorry this site has gotten boring. But we are glad. Hopefully if you are here because you are facing nephrotic syndrome you won't be too far away from finding life boring again also.
I created this blog when my 6 year old daughter was diagnosed with Nephrotic Syndrome (NS). As an uncommon and difficult to understand condition I wanted a journal, along with a way to let family know how she was doing, and a way to connect with others experiencing the same thing. This blog chronicals the events, emotions, and more she and we as a family went through. The initial episode begins in March 2008. On the side are pictures as well as links to sites I found helpful.
Thursday, April 30, 2009
Saturday, April 4, 2009
Cruise Control
It's hard to believe, but in a couple of weeks we will reach our 6 month mark. 6 months since she went off cytoxan, 6 months since she has taken any prednisone, and 6 months without her kidneys spilling proteins. All this in spite of colds and allergies (the usual suspected triggers.) We have much to be greatful for.
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